Table 2 Code book
Themes | Categories | Codes and subcodes |
|---|---|---|
Donation request seen by relatives | Decision | 1. Communication with ICU staff and among relatives about the decision and afterwards, |
2. Patient’s wish (not) known from earlier communication or donation register, | ||
3. Agreement between relatives about the decision, | ||
4. Organ donation by children | ||
Evaluation | 5. Values of patient, respect for autonomy of patient, | |
6. Values of relatives, | ||
7. Influence of religion on the decision, | ||
8. Regret about decision, | ||
9. How do relatives feel about the donation request, | ||
10. Objectives by relatives against donation | ||
Support | 11. Enough time to decide, | |
12. Enough understandable information to make a decision, | ||
13. What is good care for the patient and the relatives to make a decision, | ||
14. Which kind of support can relatives help to make the right decision, | ||
15. Which person (counsellor) can guide relatives to the right decision | ||
Donation request seen by ICU staff | Requestor | 16. Requestor: who is requestor, who assists in the request, relational aspects between relatives and requestor, |
17. Task of the requestor, information required about the donation procedure and about brain death to bring relatives to a decision, | ||
18. Skills required for the requestor, use of information (about patient’s wish or ideas of relatives) gathered by nurses, use of information from the donation register | ||
19. Attitude required for the requestor | ||
Context of the request | 20. Where, when, timing, initiative of relatives before the request, acuteness of the situation, | |
21. Decoupling | ||
Interest | 22. Interest of relatives, interest of potential donor, interest of patients on waiting list – as theme in the donation request | |
Brain death | 23. Brain death (understanding by ICU staff, by relatives), difficulties in care for a brain dead patient, determination of brain death, apneu test | |
Feeling comfortable with donation request | 24. How do ICU staff feel about the donation request, if they are requestor, if they facilitate the request | |
Personal ideas about organ donation | 25. Personal ideas of ICU staff about organ donation, registration, donation law; change in ideas as a consequence of experiences with donation procedures | |
After-care | Care after death for relatives | 26. Offering relatives contact and care after leaving the hospital, request by relatives for aftercare |
Themes in aftercare contact | 27. Themes of aftercare conversation, review of the donation decision including regret | |
Organ donation in society | Law and organ donation | 28. Donation law, Dutch system (opt-in) in contrast to Spain, Belgium (opt-out) |
donation register | 29. Donation register: how it works, preferences, motivation for registration, campaigns for registration, the importance of registration | |
Organ donation as societal theme | 30. Organ donation in media, education, information campaigns, in societal groups (family, health care, school) |